Jesy Nelson has shared a deeply touching glimpse of her twin daughters, Ocean and Story, as the little girls continue their brave battle with SMA Type 1.
The former Little Mix star, 34, posted an adorable clip of her nine-month-old twins holding hands after a feed, revealing the sweet bedtime habit that has melted fans’ hearts.
Jesy wrote: “Right after their feed they always go to sleep but they have to hold each others hands to sleep.”
In another emotional post, the twins were seen wearing matching yellow outfits, with Jesy captioning the clip: “My whole heart and soul.”
Jesy revealed in January that Ocean and Story had been diagnosed with Spinal Muscular Atrophy Type 1, a rare muscle-wasting condition. Since then, she has devoted herself to caring for her daughters while also campaigning for SMA to be included in newborn screening across England.
The singer has been pushing for earlier testing after saying her daughters’ late diagnosis meant they would never be able to walk.
Her campaign recently reached a major milestone after Health Secretary Wes Streeting announced plans for more than 400,000 babies in England to be screened for SMA from October 2026.
However, Jesy admitted the news was “bittersweet”, explaining that the testing will only happen in certain areas at first.
She told fans: “It’s essentially a postcode lottery for your baby which shouldn’t be the case. All babies lives matter.”
Jesy added that she would keep fighting to make sure every newborn in England has access to the test, saying the campaign still has “a long way to go.”
Amid the difficult journey, Jesy’s latest video offered a tender reminder of the bond between her daughters — two little sisters holding on to each other as their mother continues to fight for their future.
