Jesy spoke out to highlight the UKâs lack of routine newborn screening for Spinal Muscular Atrophy

SOPHIE Morgan has spoken out after Cat Deeley came under fire for what campaigners have branded âinappropriateâ wording while discussing Jesy Nelsonâs twinsâ heartbreaking diagnosis on This Morning.


Jesy, 34, recently revealed that her eight-month-old daughters Ocean Jade and Story Monroe â whom she shares with partner Zion Foster â have been diagnosed with Spinal Muscular Atrophy (SMA), the most severe form of a rare muscle-wasting condition that may leave them unable to walk.
Following the emotional interview with Cat, 49, disability activist Sophie, 40, reshared a post criticising the presenterâs phrasing.
The message, originally posted by Guardian writer Frances Ryan, read:
âIâm sure @catdeeley means nothing but kindness here but worth noting the kids âcould have lived normal livesâ is not an appropriate phrase.
Disabled children CAN have careers, marriages, mates. But they will face structural barriers to get them, as well as (sometimes) physical pain and suffering.
This is one reason why having disabled journalists in the media is crucial. There are four non-disabled people here discussing how disability affects lives (one of whom has spent years arguing to cut disability benefits).
Many people like Cat will mean well but you need people in the room who can bring nuance and knowledge that only comes with lived experience.â
Backing the post, Sophie â who is paralysed â added:
âSpot on @frances.ryan85. We also need disabled people BEHIND the camera to make sure these on-camera discussions are nuanced. It takes a team.â
Jesy had appeared on This Morning to draw attention to the fact that the UK still does not offer routine newborn screening for SMA â despite the test costing just 36p and allowing babies to access vital early treatment before symptoms develop.
After the interview, Cat said:
âIt was interesting Nick [Ferrari] because I was looking into it yesterday before we spoke to Jesy and itâs available in 43 countries around the world. Itâs been available in the United States since 2023.
So for the sake of 36p, to me it seems ridiculous that we are not already doing this, especially when time is of the essence and the treatment can be got so that the children can live normal lives.â
An emotional Jesy then shared further details about her daughtersâ battle, saying:
âThey had their treatment, thank God â a one-off infusion. That puts the gene back in their body that they donât have. It stops the muscles still working from dying.
Any that have gone, you canât regain them back. Now itâs down to constant physio. Weâve been told theyâll probably never walk or regain their neck strength. Theyâll probably be in wheelchairs.â
Source:Â https://www.dailymail.co.uk/



